Thursday, February 18, 2010
I really stink at updating
So I guess last time I updated Max was going to see the cardiologist. We got some great news in that department!!! His heart was totally normal!!! So I am guessing Maxwell's offical diagnoses will be PHACE Syndrome but he only has the H-A-E parts. Also he is being reffered to the Dr. who coined the term PHACE syndome. She is the one who knows just about all there is to know about and how to treat this mess. We are hoping to see her by next week since Maxwell seems to be having some issues right now. So anyways I will try to do better about the posts. We are hoping and praying for some concret info and treatment for him very soon!
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